She’s right. Huh? Anybody who has known me longer than a millisecond knows that telling me that I’m faking it is a very quick way to set me off. One of my closest friends texted me that message a couple of weeks ago. I knew there were multiple layers there, so it’s running around in… Read more “You Fake it Well.”
Ana. Ana fits into the same category as Aunt Flo; the frequent but unappreciated guest with awful timing (apologies to any men who aren’t familiar with the term). Except Ana is less predictable, less frequent (usually) and more dramatic than Aunt Flo. Fortunately, when Ana comes to visit almost every day, the drama is spread… Read more What’s Ana? (Who? Where?) Street Conversation #5
My thinly veiled rant continues. I’m outlining what works well for me when I go to see a specialist. If u havent read part one and want to… It’s here. Who’s In Charge? The way we interact with physicians has changed dramatically in the last 30 years. We no longer walk in, describe our symptoms,… Read more So THAT’s how it’s Supposed to Go! MCAS and Specialists, Part Two.
MCAS and our current medical paradigm clash. It can’t be treated ‘system by system’. I need to see SO many different specialists, and I have to be the go-between, referee, and decision maker. As I’m sure you can guess, I’ve had a few bumps with physicians. People with MCAS are notorious for ‘burning through’ specialists.… Read more So THAT’s How it’s Supposed to Go! Specialists and MCAS, Part One
For those of you who aren’t aware of it already, “Don’t bet against Occam” is Dr Afrin’s book, published last year. Occam (Okham) was a friar and philosopher in the 14th century. (Here is Brittanica’s blurb if you want to know more). There’s some debate of he was the first one to write about it,… Read more My ‘Occam’s List’
http://www.athinkingpatient.com/somatic-disorder-misdiagnosis-mast-cell-activation-conversion/ Last week this topic popped up everywhere. I have been fighting the ‘it’s all in her head’ for years, and had such stunningly similar experiences. Several patients with MCAS have gone public, and said ‘NO. This isn’t okay. I’ve had enough. This is utterly illogical. It is cruel. It is wasteful of human lives… Read more Ditto: Time to say ‘enough’.
“No. But yes.” (Helpful, eh?). The longer answer is “Yes, I have had it my whole life. But I didn’t know it, and it was nowhere near as bad as it is now.” It’s amazing what you can see in hindsight. I have had relatively minor ailments my whole life. They were always ‘atypical’ or… Read more Street Corner Conversation #4 “Have you always had this?”
It was too good to last, of course, but that only highlights how wonderful it was. There was no huge event, or exciting surprises. It was normal. And what a luxury 'normal' is. And it would appear that a poorly timed crash has turfed this post. The same crash posted some articles that weren't quite… Read more A Banner Week
Grace and Frankie is a fun show on Netflix. It's well done, all around. Jane Fonda and Lily Tomlin play off each other beautifully, and it's a rare bird, that can show depth and emotion and be hysterically funny at the same time. It's made me laugh hard enough that Hubby comes in to check… Read more Grace and Frankie: I bet Allison has MCAS.
Disclaimer: This is one of those times where I actively disagree with the standard veiws held by many physicians. I'm not a doctor, so don't take my advice, don't not take my advice, don't blindly follow my thinking, stop and think things through; most importantly, err on the side of caution. I will never forget… Read more Skin Scratch Tests and MCAS