My Personal Journey

Tryptase

Tryptase. The mere mention of it makes Mastie’s cringe. Physicians and patients alike seem to have a great deal of difficulty sorting to out. A recent discussion came up after patients had been to see Dr Vadas, the most well known Canadian MCAS expert. It seemed that he was giving contradictory advice. He had told… Read more Tryptase

Well That’s Better!

          Firstly, I took some  better snapshots of my view. Photography is definitely not my best medium, but it should give you a better sense.  I definitely could never afford this view, but it’s easy to see why everybody wants to live here.           The more important… Read more Well That’s Better!

The Silver Lining

It’s been ages since I gave you all a medical update. It’s been a very rough winter and spring. My nutrition is abysmal, and it’s catching up with me. I have had 3 iron infusions, and some extra B, and that has helped a lot. The winter and spring were kindof unrelenting on the Health… Read more The Silver Lining

A Letter to the Man in the Peacoat

This is for the young man at JJ Bean today. Thank you for noticing. Thank you for making others notice, thank you for caring. I went to JJ Bean today after picking up my daughter from school (coffee shops are a way of life here, JJ Bean is a local company- and they have access… Read more A Letter to the Man in the Peacoat

Merry Christmas! Top Ten Reasons to Suspect Santa has MCAS:

On Christmas Eve, Hubby was reading ‘A Visit from St Nicolas’ (The Night before Christmas) he got to the line “His cheeks were like roses”, and made a joke about Santa having MCAS. As these things can go with over-tired children and punchy adults, we started to diagnose Santa, with lots of giggles… Didn’t exactly lead… Read more Merry Christmas! Top Ten Reasons to Suspect Santa has MCAS:

The Specialist Parade

Since the beginning of September I’ve seen the dentist, the allergist, the pelvic floor surgeon, internal med, cardiologist, rheumatologist, trigger point therapist and GI specialist. No wonder I didn’t write much, I wanted to catch you all up. Here’s a super fast overview: Cardiologist is concerned about my BP, as is everyone else. Baseline is… Read more The Specialist Parade

My Weird Pain, Part Two

After breaking my arm as a child, it looked like I simply had a high pain tolerance. (If you havent already done so, you might want to read part 1 here.). As I got older, it seemed to normalize. In many ways, it seemed like I was actually ‘too‘ sensitive to pain. I’d had some ‘minor’… Read more My Weird Pain, Part Two

The Tale of the Broken Arm (or, My Weird Pain, Part One).

When I was six, I fell out of the big maple tree in our front yard. Anyone who has known me for a millisecond knows this story, my apologies to those who are sick of it! I had been hanging from my knees on a branch, only a few feet off the ground, but upside… Read more The Tale of the Broken Arm (or, My Weird Pain, Part One).

Gratitude

Happy Thanksgiving! This past weekend was Canadian Thanksgiving. It’s a perfect reminder to take a step back and be grateful. I have a ton of stuff to be grateful for. When I compare myself to my neighbours, family and friends, my life can look pretty sucky. We don’t have a place in Whistler or a cottage in… Read more Gratitude