My Personal Journey

The Virus Arrives: A Shocking Lack of Preparedness

Last week, I went to ambulatory care to get my access to my port changed. I often do it at home, but I go there once a month to pick up supplies and have a nurse change it, have a look at it. (Apparently they want me to come in every week now- which is… Read more The Virus Arrives: A Shocking Lack of Preparedness

Better Late Than Never (or, Happy Valentine’s Day)

I had a package arrive two weeks ago. It was sent on December 10th (guaranteed to arrive by the 16th), arrived the last day of January. It’s a box full of Finnish chocolates for Christmas. (Fazer Nougat will always say ‘Merry Christmas!’ to me.) it’s annoying that they were late- but that doesn’t mean I… Read more Better Late Than Never (or, Happy Valentine’s Day)

When Physicians Don’t have an Answer

Physicians are people, falliable, imperfect, emotive people. And yet, they are expected to be perfect, to know everything, to never make an error. How silly! These expectations make physicians worse, not better. The fear of liability permiates, yet anyone who has ever tried to sue a doctor in Canada knows that it’s almost impossible to… Read more When Physicians Don’t have an Answer

Tryptase

Tryptase. The mere mention of it makes Mastie’s cringe. Physicians and patients alike seem to have a great deal of difficulty sorting to out. A recent discussion came up after patients had been to see Dr Vadas, the most well known Canadian MCAS expert. It seemed that he was giving contradictory advice. He had told… Read more Tryptase

Well That’s Better!

          Firstly, I took some  better snapshots of my view. Photography is definitely not my best medium, but it should give you a better sense.  I definitely could never afford this view, but it’s easy to see why everybody wants to live here.           The more important… Read more Well That’s Better!

The Silver Lining

It’s been ages since I gave you all a medical update. It’s been a very rough winter and spring. My nutrition is abysmal, and it’s catching up with me. I have had 3 iron infusions, and some extra B, and that has helped a lot. The winter and spring were kindof unrelenting on the Health… Read more The Silver Lining

A Letter to the Man in the Peacoat

This is for the young man at JJ Bean today. Thank you for noticing. Thank you for making others notice, thank you for caring. I went to JJ Bean today after picking up my daughter from school (coffee shops are a way of life here, JJ Bean is a local company- and they have access… Read more A Letter to the Man in the Peacoat

Merry Christmas! Top Ten Reasons to Suspect Santa has MCAS:

On Christmas Eve, Hubby was reading ‘A Visit from St Nicolas’ (The Night before Christmas) he got to the line “His cheeks were like roses”, and made a joke about Santa having MCAS. As these things can go with over-tired children and punchy adults, we started to diagnose Santa, with lots of giggles… Didn’t exactly lead… Read more Merry Christmas! Top Ten Reasons to Suspect Santa has MCAS:

The Specialist Parade

Since the beginning of September I’ve seen the dentist, the allergist, the pelvic floor surgeon, internal med, cardiologist, rheumatologist, trigger point therapist and GI specialist. No wonder I didn’t write much, I wanted to catch you all up. Here’s a super fast overview: Cardiologist is concerned about my BP, as is everyone else. Baseline is… Read more The Specialist Parade