My Personal Journey

The Specialist Parade

Since the beginning of September I’ve seen the dentist, the allergist, the pelvic floor surgeon, internal med, cardiologist, rheumatologist, trigger point therapist and GI specialist. No wonder I didn’t write much, I wanted to catch you all up. Here’s a super fast overview: Cardiologist is concerned about my BP, as is everyone else. Baseline is… Read more The Specialist Parade

My Weird Pain, Part Two

After breaking my arm as a child, it looked like I simply had a high pain tolerance. (If you havent already done so, you might want to read part 1 here.). As I got older, it seemed to normalize. In many ways, it seemed like I was actually ‘too‘ sensitive to pain. I’d had some ‘minor’… Read more My Weird Pain, Part Two

The Tale of the Broken Arm (or, My Weird Pain, Part One).

When I was six, I fell out of the big maple tree in our front yard. Anyone who has known me for a millisecond knows this story, my apologies to those who are sick of it! I had been hanging from my knees on a branch, only a few feet off the ground, but upside… Read more The Tale of the Broken Arm (or, My Weird Pain, Part One).

The Apocalypse? A Reality TV show? The Gods got bored?

What the hell is going on? Please tell me it’s not only me who thinks that the world has gone mad… Three hurricanes at once- a few weeks after another record breaking storm. Kim and Trump are having a pissing match- with the highest stakes possible. Putin is so cocky that he insults Trump openly… Read more The Apocalypse? A Reality TV show? The Gods got bored?

Street Corner Conversation #4 “Have you always had this?”

“No. But yes.” (Helpful, eh?). The longer answer is “Yes, I have had it my whole life. But I didn’t know it, and it was nowhere near as bad as it is now.” It’s amazing what you can see in hindsight. I have had relatively minor ailments my whole life. They were always ‘atypical’ or… Read more Street Corner Conversation #4 “Have you always had this?”

I’m going to be paying for this one.. it was worth it! 

Today was my son’s graduation from grade seven- he’ll start highschool next year.  A year ago, going into that gym would have ended with me in the hospital. I premedicated myself like hell, and pulled my mask on tight, and I did it! Well, I watched him get his service award and his certificate, and… Read more I’m going to be paying for this one.. it was worth it! 

“You played a part in saving someone’s life this weekend.” (Or: Why am I doing this?)

What?  “Yes.” My doctor continued. “This weekend you very likely saved the life of a woman out East.” “Huh?” (How articulate of me).  My doctor went on to explain that she has a friend who is a doctor, and who has become very interested in my case, and in MCAS. My Doc sends her copies… Read more “You played a part in saving someone’s life this weekend.” (Or: Why am I doing this?)

A Milestone: A new allergist. 

My journey has been quite unexpected. Along the way though, there are points that deserve a pin on the map. Times when you choose to take a different direction, or you meet new companions. Sometimes they are only seen in hindsight, some that are immediately obvious. The last two weeks have turned things upside down.… Read more A Milestone: A new allergist.