Happy Thanksgiving! This past weekend was Canadian Thanksgiving. It’s a perfect reminder to take a step back and be grateful. I have a ton of stuff to be grateful for. When I compare myself to my neighbours, family and friends, my life can look pretty sucky. We don’t have a place in Whistler or a cottage in… Read more Gratitude
She’s right. Huh? Anybody who has known me longer than a millisecond knows that telling me that I’m faking it is a very quick way to set me off. One of my closest friends texted me that message a couple of weeks ago. I knew there were multiple layers there, so it’s running around in… Read more “You Fake it Well.”
Ana. Ana fits into the same category as Aunt Flo; the frequent but unappreciated guest with awful timing (apologies to any men who aren’t familiar with the term). Except Ana is less predictable, less frequent (usually) and more dramatic than Aunt Flo. Fortunately, when Ana comes to visit almost every day, the drama is spread… Read more What’s Ana? (Who? Where?) Street Conversation #5
My thinly veiled rant continues. I’m outlining what works well for me when I go to see a specialist. If u havent read part one and want to… It’s here. Who’s In Charge? The way we interact with physicians has changed dramatically in the last 30 years. We no longer walk in, describe our symptoms,… Read more So THAT’s how it’s Supposed to Go! MCAS and Specialists, Part Two.
MCAS and our current medical paradigm clash. It can’t be treated ‘system by system’. I need to see SO many different specialists, and I have to be the go-between, referee, and decision maker. As I’m sure you can guess, I’ve had a few bumps with physicians. People with MCAS are notorious for ‘burning through’ specialists.… Read more So THAT’s How it’s Supposed to Go! Specialists and MCAS, Part One
What the hell is going on? Please tell me it’s not only me who thinks that the world has gone mad… Three hurricanes at once- a few weeks after another record breaking storm. Kim and Trump are having a pissing match- with the highest stakes possible. Putin is so cocky that he insults Trump openly… Read more The Apocalypse? A Reality TV show? The Gods got bored?
For those of you who aren’t aware of it already, “Don’t bet against Occam” is Dr Afrin’s book, published last year. Occam (Okham) was a friar and philosopher in the 14th century. (Here is Brittanica’s blurb if you want to know more). There’s some debate of he was the first one to write about it,… Read more My ‘Occam’s List’
http://www.athinkingpatient.com/somatic-disorder-misdiagnosis-mast-cell-activation-conversion/ Last week this topic popped up everywhere. I have been fighting the ‘it’s all in her head’ for years, and had such stunningly similar experiences. Several patients with MCAS have gone public, and said ‘NO. This isn’t okay. I’ve had enough. This is utterly illogical. It is cruel. It is wasteful of human lives… Read more Ditto: Time to say ‘enough’.
“No. But yes.” (Helpful, eh?). The longer answer is “Yes, I have had it my whole life. But I didn’t know it, and it was nowhere near as bad as it is now.” It’s amazing what you can see in hindsight. I have had relatively minor ailments my whole life. They were always ‘atypical’ or… Read more Street Corner Conversation #4 “Have you always had this?”
It was too good to last, of course, but that only highlights how wonderful it was. There was no huge event, or exciting surprises. It was normal. And what a luxury 'normal' is. And it would appear that a poorly timed crash has turfed this post. The same crash posted some articles that weren't quite… Read more A Banner Week