I’ve been in hospital for well over a month now. I am feeling much, much better than I have in a long time. I suspect I may have been fighting this since late winter. I believe the infection started where a nurse had accidentally gone to the side of the port, not into it, twice… Read more A Month In
Firstly, I took some better snapshots of my view. Photography is definitely not my best medium, but it should give you a better sense. I definitely could never afford this view, but it’s easy to see why everybody wants to live here. The more important… Read more Well That’s Better!
It’s been ages since I gave you all a medical update. It’s been a very rough winter and spring. My nutrition is abysmal, and it’s catching up with me. I have had 3 iron infusions, and some extra B, and that has helped a lot. The winter and spring were kindof unrelenting on the Health… Read more The Silver Lining
This is for the young man at JJ Bean today. Thank you for noticing. Thank you for making others notice, thank you for caring. I went to JJ Bean today after picking up my daughter from school (coffee shops are a way of life here, JJ Bean is a local company- and they have access… Read more A Letter to the Man in the Peacoat
Perhaps I’m as dumb as a bag of rocks, and you’ll all think I’m a touch touched, but I finally figured out what doctors mean by an ‘elimination diet’. If you aren’t already aware, basically, you don’t eat anything, and foods are added back into the diet one at a time. I’ve always wanted to… Read more ‘The Elimination Diet’ Finally Makes Sense!
Hello fellow Masties! I could use your help with a question that’s been on my mind. As you probably know, MCAS often follows a ‘stair’ shaped progression, marked by a sudden increase in severity followed by some partial improvement with changes in your medications and trigger avoidance. But then you see another sudden increase in… Read more MCAD/MCAS Progression Survey
Hear Hear! A topic close to my heart. Lisa Klimas at Mast Attack published an open letter to healthcare practitioners on the topic of pain medications. I started to write her a message, and I realized that it could have a wider audience, so I put most of it here. The more voices there are,… Read more Response to Lisa’s Letter on Pain Meds
Since the beginning of September I’ve seen the dentist, the allergist, the pelvic floor surgeon, internal med, cardiologist, rheumatologist, trigger point therapist and GI specialist. No wonder I didn’t write much, I wanted to catch you all up. Here’s a super fast overview: Cardiologist is concerned about my BP, as is everyone else. Baseline is… Read more The Specialist Parade
After breaking my arm as a child, it looked like I simply had a high pain tolerance. (If you havent already done so, you might want to read part 1 here.). As I got older, it seemed to normalize. In many ways, it seemed like I was actually ‘too‘ sensitive to pain. I’d had some ‘minor’… Read more My Weird Pain, Part Two
She’s right. Huh? Anybody who has known me longer than a millisecond knows that telling me that I’m faking it is a very quick way to set me off. One of my closest friends texted me that message a couple of weeks ago. I knew there were multiple layers there, so it’s running around in… Read more “You Fake it Well.”