Perhaps I’m as dumb as a bag of rocks, and you’ll all think I’m a touch touched, but I finally figured out what doctors mean by an ‘elimination diet’. If you aren’t already aware, basically, you don’t eat anything, and foods are added back into the diet one at a time. I’ve always wanted to… Read more ‘The Elimination Diet’ Finally Makes Sense!
Hello fellow Masties! I could use your help with a question that’s been on my mind. As you probably know, MCAS often follows a ‘stair’ shaped progression, marked by a sudden increase in severity followed by some partial improvement with changes in your medications and trigger avoidance. But then you see another sudden increase in… Read more MCAD/MCAS Progression Survey
Hear Hear! A topic close to my heart. Lisa Klimas at Mast Attack published an open letter to healthcare practitioners on the topic of pain medications. I started to write her a message, and I realized that it could have a wider audience, so I put most of it here. The more voices there are,… Read more Response to Lisa’s Letter on Pain Meds
Since the beginning of September I’ve seen the dentist, the allergist, the pelvic floor surgeon, internal med, cardiologist, rheumatologist, trigger point therapist and GI specialist. No wonder I didn’t write much, I wanted to catch you all up. Here’s a super fast overview: Cardiologist is concerned about my BP, as is everyone else. Baseline is… Read more The Specialist Parade
After breaking my arm as a child, it looked like I simply had a high pain tolerance. (If you havent already done so, you might want to read part 1 here.). As I got older, it seemed to normalize. In many ways, it seemed like I was actually ‘too‘ sensitive to pain. I’d had some ‘minor’… Read more My Weird Pain, Part Two
She’s right. Huh? Anybody who has known me longer than a millisecond knows that telling me that I’m faking it is a very quick way to set me off. One of my closest friends texted me that message a couple of weeks ago. I knew there were multiple layers there, so it’s running around in… Read more “You Fake it Well.”
Ana. Ana fits into the same category as Aunt Flo; the frequent but unappreciated guest with awful timing (apologies to any men who aren’t familiar with the term). Except Ana is less predictable, less frequent (usually) and more dramatic than Aunt Flo. Fortunately, when Ana comes to visit almost every day, the drama is spread… Read more What’s Ana? (Who? Where?) Street Conversation #5
MCAS and our current medical paradigm clash. It can’t be treated ‘system by system’. I need to see SO many different specialists, and I have to be the go-between, referee, and decision maker. As I’m sure you can guess, I’ve had a few bumps with physicians. People with MCAS are notorious for ‘burning through’ specialists.… Read more So THAT’s How it’s Supposed to Go! Specialists and MCAS, Part One
I just looked out my back window. It’s a beautiful veiw. We look out across a valley. There are three ‘layers’ of mountains, with a foreground of trees- framed by the trunks of tall cedars. When I try and paint it, it looks fake because the ‘layers’ of mountains are remarkably even. I live just… Read more The Big Smoke
My journey has been quite unexpected. Along the way though, there are points that deserve a pin on the map. Times when you choose to take a different direction, or you meet new companions. Sometimes they are only seen in hindsight, some that are immediately obvious. The last two weeks have turned things upside down.… Read more A Milestone: A new allergist.