Autonomic Dysfunction

The Tale of the Broken Arm (or, My Weird Pain, Part One).

When I was six, I fell out of the big maple tree in our front yard. Anyone who has known me for a millisecond knows this story, my apologies to those who are sick of it! I had been hanging from my knees on a branch, only a few feet off the ground, but upside… Read more The Tale of the Broken Arm (or, My Weird Pain, Part One).

So THAT’s How it’s Supposed to Go! Specialists and MCAS, Part One

MCAS and our current medical paradigm clash. It can’t be treated ‘system by system’. I need to see SO many different specialists, and I have to be the go-between, referee, and decision maker. As I’m sure you can guess, I’ve had a few bumps with physicians. People with MCAS are notorious for ‘burning through’ specialists.… Read more So THAT’s How it’s Supposed to Go! Specialists and MCAS, Part One

Skin Scratch Tests and MCAS

Disclaimer: This is one of those times where I actively disagree with the standard veiws held by many physicians. I'm not a doctor, so don't take my advice, don't not take my advice, don't blindly follow my thinking, stop and think things through; most importantly, err on the side of caution. I will never forget… Read more Skin Scratch Tests and MCAS

“What are you allergic to?” Street conversation #3

“Everything and anything”.  At this point, the person I am talking to goes one of two ways. One group says “That must be hard.”. It’s usually a pretty clear conversation ender. If they say “What? Do you have food allergies, or environmental stuff, or meds. Or???” “Yes.” “Actually, it’s probably; easier to tell you what… Read more “What are you allergic to?” Street conversation #3

Let’s Start at the very Beginning…

April 2017 So, this all began on November 21, 2011. No, maybe it was August of 1991 (nasty upper respiratory infection), oh- or September of 2001 (when I had reactive arthritis). Maybe it was the flower bee when I was 6 or 7? Well, so perhaps starting at the beginning is a very good way… Read more Let’s Start at the very Beginning…