With the buzz created about a new International Mast Cell Disorders organization, and a launch of the first Mast Cell Disorders awareness day last weekend, I thought I’d bring my own particular flavour to it. I’m currently into beading and jewelry, and it was fun to find beads that might work, and to make several others.… Read more Mast Cell Beads
There’s something about root canals… Why is it that people with MCAS seem to have such problems with dentistry (more info on that here) and root canals in particular? I know so many Mastie’s who have had infections, facial nerve damage (like my Mom had), and MCAS flares set off by a root canal. It… Read more No Root Canals for Me!
It’s September, must be time to get back to work… My life has always been ruled by the school calendar. Not only did I spend my entire childhood at school, plus 6 years of post secondary education, my profession was always in schools. Of course, even though I’m not working as an SLP, I have… Read more Back to work!
I’ve been in hospital for well over a month now. I am feeling much, much better than I have in a long time. I suspect I may have been fighting this since late winter. I believe the infection started where a nurse had accidentally gone to the side of the port, not into it, twice… Read more A Month In
It’s been ages since I gave you all a medical update. It’s been a very rough winter and spring. My nutrition is abysmal, and it’s catching up with me. I have had 3 iron infusions, and some extra B, and that has helped a lot. The winter and spring were kindof unrelenting on the Health… Read more The Silver Lining
I’ve decorated all my masks, you’ll find a gallery here. My mask means freedom. I wear it or have it in hand all the time when I’m out in public. I react to most perfumes and fragrances, the smell of many foods, airborne allergens (like pollen, cats, dogs, dust,… Read more Blinged Out Masks!
Perhaps I’m as dumb as a bag of rocks, and you’ll all think I’m a touch touched, but I finally figured out what doctors mean by an ‘elimination diet’. If you aren’t already aware, basically, you don’t eat anything, and foods are added back into the diet one at a time. I’ve always wanted to… Read more ‘The Elimination Diet’ Finally Makes Sense!
Hello fellow Masties! I could use your help with a question that’s been on my mind. As you probably know, MCAS often follows a ‘stair’ shaped progression, marked by a sudden increase in severity followed by some partial improvement with changes in your medications and trigger avoidance. But then you see another sudden increase in… Read more MCAD/MCAS Progression Survey
Hear Hear! A topic close to my heart. Lisa Klimas at Mast Attack published an open letter to healthcare practitioners on the topic of pain medications. I started to write her a message, and I realized that it could have a wider audience, so I put most of it here. The more voices there are,… Read more Response to Lisa’s Letter on Pain Meds
On Christmas Eve, Hubby was reading ‘A Visit from St Nicolas’ (The Night before Christmas) he got to the line “His cheeks were like roses”, and made a joke about Santa having MCAS. As these things can go with over-tired children and punchy adults, we started to diagnose Santa, with lots of giggles… Didn’t exactly lead… Read more Merry Christmas! Top Ten Reasons to Suspect Santa has MCAS: