EDS

The Specialist Parade

Since the beginning of September I’ve seen the dentist, the allergist, the pelvic floor surgeon, internal med, cardiologist, rheumatologist, trigger point therapist and GI specialist. No wonder I didn’t write much, I wanted to catch you all up. Here’s a super fast overview: Cardiologist is concerned about my BP, as is everyone else. Baseline is… Read more The Specialist Parade

Don’t stand so Close to Me

I started this post a few weeks ago, just as Trump was trying to say that there were ‘good people on both sides’ i the protests in Charlottesville. Since then, the ugly truth about people abusing their power-especially men with young women (or girls). I am still stunned by Trump supporting a senate candidate who… Read more Don’t stand so Close to Me

My Weird Pain, Part Two

After breaking my arm as a child, it looked like I simply had a high pain tolerance. (If you havent already done so, you might want to read part 1 here.). As I got older, it seemed to normalize. In many ways, it seemed like I was actually ‘too‘ sensitive to pain. I’d had some ‘minor’… Read more My Weird Pain, Part Two

The Tale of the Broken Arm (or, My Weird Pain, Part One).

When I was six, I fell out of the big maple tree in our front yard. Anyone who has known me for a millisecond knows this story, my apologies to those who are sick of it! I had been hanging from my knees on a branch, only a few feet off the ground, but upside… Read more The Tale of the Broken Arm (or, My Weird Pain, Part One).

MCAS and Dentistry. 13?…make that 15… cavities

And that’s in addition to the six I had fixed this time last year. Today I’m going to get the first half done, I’ve got another appointment next week for the others. Getting my cleaning a couple of weeks ago turned up the pain in them, to the point where it was constant hum. I… Read more MCAS and Dentistry. 13?…make that 15… cavities

“You Fake it Well.”

She’s right. Huh? Anybody who has known me longer than a millisecond knows that telling me that I’m faking it is a very quick way to set me off. One of my closest friends texted me that message a couple of weeks ago. I knew there were multiple layers there, so it’s running around in… Read more “You Fake it Well.”

So THAT’s How it’s Supposed to Go! Specialists and MCAS, Part One

MCAS and our current medical paradigm clash. It can’t be treated ‘system by system’. I need to see SO many different specialists, and I have to be the go-between, referee, and decision maker. As I’m sure you can guess, I’ve had a few bumps with physicians. People with MCAS are notorious for ‘burning through’ specialists.… Read more So THAT’s How it’s Supposed to Go! Specialists and MCAS, Part One

My ‘Occam’s List’

For those of you who aren’t aware of it already, “Don’t bet against Occam” is Dr Afrin’s book, published last year. Occam (Okham) was a friar and philosopher in the 14th century. (Here is Brittanica’s blurb if you want to know more). There’s some debate of he was the first one to write about it,… Read more My ‘Occam’s List’

Skin Scratch Tests and MCAS

Disclaimer: This is one of those times where I actively disagree with the standard veiws held by many physicians. I'm not a doctor, so don't take my advice, don't not take my advice, don't blindly follow my thinking, stop and think things through; most importantly, err on the side of caution. I will never forget… Read more Skin Scratch Tests and MCAS