EDS

So THAT’s How it’s Supposed to Go! Specialists and MCAS, Part One

MCAS and our current medical paradigm clash. It can’t be treated ‘system by system’. I need to see SO many different specialists, and I have to be the go-between, referee, and decision maker. As I’m sure you can guess, I’ve had a few bumps with physicians. People with MCAS are notorious for ‘burning through’ specialists.… Read more So THAT’s How it’s Supposed to Go! Specialists and MCAS, Part One

My ‘Occam’s List’

For those of you who aren’t aware of it already, “Don’t bet against Occam” is Dr Afrin’s book, published last year. Occam (Okham) was a friar and philosopher in the 14th century. (Here is Brittanica’s blurb if you want to know more). There’s some debate of he was the first one to write about it,… Read more My ‘Occam’s List’

A Banner Week

It was too good to last, of course, but that only highlights how wonderful it was. There was no huge event, or exciting surprises. It was normal. And what a luxury 'normal' is. And it would appear that a poorly timed crash has turfed this post. The same crash posted some articles that weren't quite… Read more A Banner Week

Skin Scratch Tests and MCAS

Disclaimer: This is one of those times where I actively disagree with the standard veiws held by many physicians. I'm not a doctor, so don't take my advice, don't not take my advice, don't blindly follow my thinking, stop and think things through; most importantly, err on the side of caution. I will never forget… Read more Skin Scratch Tests and MCAS

The Big Smoke

I just looked out my back window. It’s a beautiful veiw. We look out across a valley. There are three ‘layers’ of mountains, with a foreground of trees- framed by the trunks of tall cedars. When I try and paint it, it looks fake because the ‘layers’ of mountains are remarkably even. I live just… Read more The Big Smoke

The Baltic Connection: A Starting Point

If my genes come from the Baltic, why am I eating eating like a Mediterranean?   Amber. Yup. Amber. That’s what finally tipped the scale. I’m ready to put my ideas out there, confident that I won’t get laughed off the stage, at least. I have tried to write this about ten times, and I… Read more The Baltic Connection: A Starting Point

I’m going to be paying for this one.. it was worth it! 

Today was my son’s graduation from grade seven- he’ll start highschool next year.  A year ago, going into that gym would have ended with me in the hospital. I premedicated myself like hell, and pulled my mask on tight, and I did it! Well, I watched him get his service award and his certificate, and… Read more I’m going to be paying for this one.. it was worth it! 

“What are you allergic to?” Street conversation #3

“Everything and anything”.  At this point, the person I am talking to goes one of two ways. One group says “That must be hard.”. It’s usually a pretty clear conversation ender. If they say “What? Do you have food allergies, or environmental stuff, or meds. Or???” “Yes.” “Actually, it’s probably; easier to tell you what… Read more “What are you allergic to?” Street conversation #3

“You played a part in saving someone’s life this weekend.” (Or: Why am I doing this?)

What?  “Yes.” My doctor continued. “This weekend you very likely saved the life of a woman out East.” “Huh?” (How articulate of me).  My doctor went on to explain that she has a friend who is a doctor, and who has become very interested in my case, and in MCAS. My Doc sends her copies… Read more “You played a part in saving someone’s life this weekend.” (Or: Why am I doing this?)

A Milestone: A new allergist. 

My journey has been quite unexpected. Along the way though, there are points that deserve a pin on the map. Times when you choose to take a different direction, or you meet new companions. Sometimes they are only seen in hindsight, some that are immediately obvious. The last two weeks have turned things upside down.… Read more A Milestone: A new allergist.