EDS

“You played a part in saving someone’s life this weekend.” (Or: Why am I doing this?)

What?  “Yes.” My doctor continued. “This weekend you very likely saved the life of a woman out East.” “Huh?” (How articulate of me).  My doctor went on to explain that she has a friend who is a doctor, and who has become very interested in my case, and in MCAS. My Doc sends her copies… Read more “You played a part in saving someone’s life this weekend.” (Or: Why am I doing this?)

A Milestone: A new allergist. 

My journey has been quite unexpected. Along the way though, there are points that deserve a pin on the map. Times when you choose to take a different direction, or you meet new companions. Sometimes they are only seen in hindsight, some that are immediately obvious. The last two weeks have turned things upside down.… Read more A Milestone: A new allergist. 

“So, you’ve been sick your whole life.”

April 2017 A physician said that to me a couple of years ago, and I was startled by it. I’ve had allergies my whole life, but I haven’t always been actively sick. I didn’t see myself as ‘sick’ until November 2011, but looking back, I am realizing that I haven’t been exactly ‘well’, either. People… Read more “So, you’ve been sick your whole life.”

Welcome!

Hello, and welcome. I’m Karen, and I would like to invite you to walk with me along my journey. It isn’t always the easiest hiking trail, but it is rarely boring. When I was in school, Rick Hansen was doing his around the world journey in his wheelchair, to raise awareness for spinal cord research. When… Read more Welcome!

Let’s Start at the very Beginning…

April 2017 So, this all began on November 21, 2011. No, maybe it was August of 1991 (nasty upper respiratory infection), oh- or September of 2001 (when I had reactive arthritis). Maybe it was the flower bee when I was 6 or 7? Well, so perhaps starting at the beginning is a very good way… Read more Let’s Start at the very Beginning…