With the buzz created about a new International Mast Cell Disorders organization, and a launch of the first Mast Cell Disorders awareness day last weekend, I thought I’d bring my own particular flavour to it. I’m currently into beading and jewelry, and it was fun to find beads that might work, and to make several others.… Read more Mast Cell Beads
I’ve been in hospital for well over a month now. I am feeling much, much better than I have in a long time. I suspect I may have been fighting this since late winter. I believe the infection started where a nurse had accidentally gone to the side of the port, not into it, twice… Read more A Month In
I’ve decorated all my masks, you’ll find a gallery here. My mask means freedom. I wear it or have it in hand all the time when I’m out in public. I react to most perfumes and fragrances, the smell of many foods, airborne allergens (like pollen, cats, dogs, dust,… Read more Blinged Out Masks!
This is for the young man at JJ Bean today. Thank you for noticing. Thank you for making others notice, thank you for caring. I went to JJ Bean today after picking up my daughter from school (coffee shops are a way of life here, JJ Bean is a local company- and they have access… Read more A Letter to the Man in the Peacoat
Hello fellow Masties! I could use your help with a question that’s been on my mind. As you probably know, MCAS often follows a ‘stair’ shaped progression, marked by a sudden increase in severity followed by some partial improvement with changes in your medications and trigger avoidance. But then you see another sudden increase in… Read more MCAD/MCAS Progression Survey
Disclaimer: This is one of those times where I actively disagree with the standard veiws held by many physicians. I'm not a doctor, so don't take my advice, don't not take my advice, don't blindly follow my thinking, stop and think things through; most importantly, err on the side of caution. I will never forget… Read more Skin Scratch Tests and MCAS
If my genes come from the Baltic, why am I eating eating like a Mediterranean? Amber. Yup. Amber. That’s what finally tipped the scale. I’m ready to put my ideas out there, confident that I won’t get laughed off the stage, at least. I have tried to write this about ten times, and I… Read more The Nordic Connection: A Starting Point
April 2017 A physician said that to me a couple of years ago, and I was startled by it. I’ve had allergies my whole life, but I haven’t always been actively sick. I didn’t see myself as ‘sick’ until November 2011, but looking back, I am realizing that I haven’t been exactly ‘well’, either. People… Read more “So, you’ve been sick your whole life.”