Physicians are people, falliable, imperfect, emotive people. And yet, they are expected to be perfect, to know everything, to never make an error. How silly! These expectations make physicians worse, not better. The fear of liability permiates, yet anyone who has ever tried to sue a doctor in Canada knows that it’s almost impossible to… Read more When Physicians Don’t have an Answer
It’s official, MCAS is a ‘thing’. No, not according to some medical governing body… according to People Magazine! There was an article in this week’s magazine about a girl with MCAS, which you can read it ://people.com/human-interest/teenage-girl-allergic-to-almost-everything/.Very rare for a pop news magazine, but they did a great job. It’s well written, and nothing jumped… Read more MCAS is real.
Seven Year Itch (Article as submitted, December 2018 to The Mighty http://www.themighty.com) I’ve been itchy for seven years. It’s time to scratch that itch. In November 2011 my life turned upside down. I’ve always had allergies, but what started as sudden severe abdominal pain signaled a new level of allergic reactions. I now know that… Read more The Seven Year Itch
With the buzz created about a new International Mast Cell Disorders organization, and a launch of the first Mast Cell Disorders awareness day last weekend, I thought I’d bring my own particular flavour to it. I’m currently into beading and jewelry, and it was fun to find beads that might work, and to make several others.… Read more Mast Cell Beads
I’ve been in hospital for well over a month now. I am feeling much, much better than I have in a long time. I suspect I may have been fighting this since late winter. I believe the infection started where a nurse had accidentally gone to the side of the port, not into it, twice… Read more A Month In
I’ve decorated all my masks, you’ll find a gallery here. My mask means freedom. I wear it or have it in hand all the time when I’m out in public. I react to most perfumes and fragrances, the smell of many foods, airborne allergens (like pollen, cats, dogs, dust,… Read more Blinged Out Masks!
This is for the young man at JJ Bean today. Thank you for noticing. Thank you for making others notice, thank you for caring. I went to JJ Bean today after picking up my daughter from school (coffee shops are a way of life here, JJ Bean is a local company- and they have access… Read more A Letter to the Man in the Peacoat
Hello fellow Masties! I could use your help with a question that’s been on my mind. As you probably know, MCAS often follows a ‘stair’ shaped progression, marked by a sudden increase in severity followed by some partial improvement with changes in your medications and trigger avoidance. But then you see another sudden increase in… Read more MCAD/MCAS Progression Survey
Disclaimer: This is one of those times where I actively disagree with the standard veiws held by many physicians. I'm not a doctor, so don't take my advice, don't not take my advice, don't blindly follow my thinking, stop and think things through; most importantly, err on the side of caution. I will never forget… Read more Skin Scratch Tests and MCAS
If my genes come from the Baltic, why am I eating eating like a Mediterranean? Amber. Yup. Amber. That’s what finally tipped the scale. I’m ready to put my ideas out there, confident that I won’t get laughed off the stage, at least. I have tried to write this about ten times, and I… Read more The Nordic Connection: A Starting Point