Severe allergies

Mast Cell Beads

With the buzz created about a new International Mast Cell Disorders organization, and a launch of the first Mast Cell Disorders awareness day last weekend, I thought I’d bring my own particular flavour to it. I’m currently into beading and jewelry, and it was fun to find beads that might work, and to make several others.… Read more Mast Cell Beads

No Root Canals for Me!

There’s something about root canals… Why is it that people with MCAS seem to have such problems with dentistry (more info on that here) and root canals in particular? I know so many Mastie’s who have had infections, facial nerve damage (like my Mom had), and MCAS flares set off by a root canal. It… Read more No Root Canals for Me!

Back to work!

It’s September, must be time to get back to work… My life has always been ruled by the school calendar. Not only did I spend my entire childhood at school, plus 6 years of post secondary education, my profession was always in schools. Of course, even though I’m not working as an SLP, I have… Read more Back to work!

The Silver Lining

It’s been ages since I gave you all a medical update. It’s been a very rough winter and spring. My nutrition is abysmal, and it’s catching up with me. I have had 3 iron infusions, and some extra B, and that has helped a lot. The winter and spring were kindof unrelenting on the Health… Read more The Silver Lining

Blinged Out Masks!

            I’ve decorated all my masks, you’ll find a gallery  here. My mask means freedom. I wear it or have it in hand all the time when I’m out in public. I react to most perfumes and fragrances, the smell of many foods, airborne allergens (like pollen, cats, dogs, dust,… Read more Blinged Out Masks!

‘The Elimination Diet’ Finally Makes Sense!

Perhaps I’m as dumb as a bag of rocks, and you’ll all think I’m a touch touched, but I finally figured out what doctors mean by an ‘elimination diet’. If you aren’t already aware, basically, you don’t eat anything, and foods are added back into the diet one at a time. I’ve always wanted to… Read more ‘The Elimination Diet’ Finally Makes Sense!

MCAD/MCAS Progression Survey

Hello fellow Masties!  I could use your help with a question that’s been on my mind. As you probably know, MCAS often follows a ‘stair’ shaped progression, marked by a sudden increase in severity followed by some partial improvement with changes in your medications and trigger avoidance.  But then you see another sudden increase in… Read more MCAD/MCAS Progression Survey

Merry Christmas! Top Ten Reasons to Suspect Santa has MCAS:

On Christmas Eve, Hubby was reading ‘A Visit from St Nicolas’ (The Night before Christmas) he got to the line “His cheeks were like roses”, and made a joke about Santa having MCAS. As these things can go with over-tired children and punchy adults, we started to diagnose Santa, with lots of giggles… Didn’t exactly lead… Read more Merry Christmas! Top Ten Reasons to Suspect Santa has MCAS:

Don’t stand so Close to Me

I started this post a few weeks ago, just as Trump was trying to say that there were ‘good people on both sides’ i the protests in Charlottesville. Since then, the ugly truth about people abusing their power-especially men with young women (or girls). I am still stunned by Trump supporting a senate candidate who… Read more Don’t stand so Close to Me

MCAS and Dentistry. 13?…make that 15… cavities

And that’s in addition to the six I had fixed this time last year. Today I’m going to get the first half done, I’ve got another appointment next week for the others. Getting my cleaning a couple of weeks ago turned up the pain in them, to the point where it was constant hum. I… Read more MCAS and Dentistry. 13?…make that 15… cavities